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The 36-Hour Day by Nancy L. Mace, Peter V. Rabins (2012)

9/1/2015

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by - Julie Fleming

The 36-Hour Day: A Family Guide for Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss 
 is the classic go-go book on Alzheimer’s Disease, with many editions in print. It discusses the nature and progression of Alzheimer’s Disease, offers help for medical and behavioral issues, make decisions concerning care and living arrangements, and find support as a caregiver.
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The 36-Hour Day is useful because it describes everything that may happen in the course of the disease. That strength, however, is what will break your heart as a caregiver. I urge you to use the book as a reference and not to read it cover to cover, because much of what is described may never happen to your parent and reading the parade of horribles is too much to bear.

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Feel the Feels.

8/31/2015

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by - Julie Fleming
Being an Alzheimer’s caregiver will mean experiencing many moments of sadness, loss, and grief. While it may seem easy (and even necessary) to ignore them to the extent that’s possible, pausing to acknowledge them will be far more helpful. Here’s why and how to do it.
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I’m Still Here: A New Philosophy of Alzheimer’s Care by John Zeisel

8/29/2015

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by - Julie Fleming

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I like I’m Still Here: A New Philosophy of Alzheimer’s Care because it explicitly counters the line you’ll hear over and over: “he just isn’t himself anymore.” My belief is that someone who has Alzheimer’s Disease is still himself, just different. The kernel of who your parent is will remain even though you often may be unable to find it. This book operates from the same philosophy and addresses how to access the abilities that remain as the disease progresses.

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Self-care NOT optional

8/28/2015

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by - Julie Fleming

As an Alzheimer’s caregiver, you may find that your own self-care is the first thing to slip off your task list. It’s understandable, especially since you’re probably already feeling pressed for time. But you have to find a way to fit self-care into your schedule. Watch today’s video to find out why it’s so important (including what happened to me that made me learn this lesson) and how you can fit it in.
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August 26th, 2016

8/26/2015

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by - Julie Fleming
Being an Alzheimer’s caregiver is demanding, and it’s easy to let your own self-care slide to the point that you begin to feel burned out. I’ve been there too. The good news is that it’s quite possible to recover from burnout. In today’s video, I’ll share three foundational steps that you can take to begin to recover your energy.
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    Author: Julie Fleming

    Julie has been providing love & care  for her father, who was diagnosed with Alzheimer's Disease in the fall of 2011. And she's had to learn it all the hard way. Sound familiar?

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  • Home
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